Sugar, yes please.

There is truly nothing greater in this world than the joy your child brings to you. While the last week or so has brought some of the greatest highs, I have experienced some significant lows too. I try to keep the highs front and center, but I often find myself shaking my head at some […]

It just doesn’t matter

Alzheimer’s disease is a thief. It robs you of your loved one, it robs them of their lives and it robs emotions. I teeter between this very intense reality of watching my mom slip away into just a body, just a tiny version of her former being, to complete denial this is happening in my […]

Tempus Fugit

So many things going on in my brain right now that I feel compelled to write. This week has been filled with so many emotions and while I know that it’s normal in many ways it still takes a toll. I started out wanting to address something that I’m so proud of with Bryan. He […]

Going back to the start

I love that Coldplay song The Scientist, it really touches me. Music always forces reflection for me. Driving to work today, Siri, accessing my playlist on my phone, played My Wish by Rascal Flatts. We used that song in Bryan’s video montage at his Bar Mitzvah. Tears filled my eyes. Today is my sweet boy’s […]

Timing is Everything!

There is this thing down here in Florida, not sure if it’s everywhere so I hope I don’t sound ignorant. It’s called the medwaiver list and it’s something you need to get your child with a disability on so they can get some government funding. Literally speaking: Medicaid Waiver Programs allow recipients to ‘waive’ institutionalization […]

Ogres are like onions

If you have seen Shrek, you know what I’m talking about. Ogres have layers. Onions have layers. Time to peel back and examine my thoughts over the last week. I almost titled this blog Working the Fan Club, Part Deux, but just couldn’t do it. Bryan had a really great Thanksgiving, that is autism parent […]