Blah, blah, blah

Bryan has PDD, pervasive developmental disorder, which is on the autism spectrum and basically means everything is delayed, get it ,pervasive? In any event, so much of our focus for him is on language. I like to describe his issues like this: he is a fully stocked  language and vocabulary warehouse, when it comes time to retrieve something, like a word, phrase, etc, the arm that does the retrieving does not work so well. Sometimes it gets it right and sometimes  the wrong phrasing comes out or it just doesn’t work at all.

We spend so much time encouraging him to speak in full sentences, to answer questions, to have a conversation. Sometimes, however, you want to say “shut up” and that offers a tremendous amount of guilt, sorrow and overall bad feelings. He used to say “I love you” thousands of times a day and even though I wanted him to be quiet, I felt all of the families of nonverbal children in my heart. Wouldn’t they kill to hear their child say “i love you” even just once. The guilt is beyond.

So, why do we feel this way?

Here are some fun examples:

1. Last week Bryan told Marcia, his speech therapist, “Marcia you look like Fat Albert.” Not the best thing to say to a woman.

2. Last night Bryan said to me “Mommy, you’re fat.”. No explanation required.

3. He often says, “I don’t touch animals’ wieners.”

4. He will repeat the same thing, like “no school on Saturday” every 45 seconds, all day on saturday.

5. When I play playstation with him, he loves to play Shrek and he says to me, “Mommy, you’re Fiona Ogre”.

Now you are thinking, how can you put up with this stuff. Well I will tell you how.

Here is the thing, any language is better than no language. But there are times where you get that taste of reality, that glimmer of hope that makes the rest of the nonsense seem just like nonsense. Bryan takes risperdal, great medicine to stop impulse control, not so great for your waistline. Bryan is an eating machine and we try to police it as best we can. This morning I came downstairs to find that my nice Jewish boy had just eaten a whole container, approx 1/2 pound of ham. I said “Bryan you ate that whole thing of ham, that’s not ok, you need to wait for mommy or daddy before having breakfast”. So he said, “sorry mommy” and then he said “I’m sorry I ate the whole thing of ham”. Well I will take that fabulous sentence, he knew what he did wrong and articulated it. All good.

The worst part is he doesn’t lie, so I guess I am fat. That’s another blog.

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15 thoughts on “Blah, blah, blah

  1. I love reading your daily entries. You are adorable and funny through your struggles. Keep it going, keep releasing and know for sure, that you are helping so many. Hugs, Karen

  2. I worked with someone for a long time who had a different set of disabilities, and every day she would tell me what day it was. 100 times. But looking back on what her prognosis was initially, she truly astounded me with her cognitive abilities. That she could distinguish the schedules on different days of the week was nothing short of a miracle. I love special kids so much.

  3. He’s doing a very good job at learning how to lie. The key is to press him on anything you think he’s lying about and he flip quicker than Mitt.

  4. You have really hit your blog stride my friend. Your posts are witty, clever, informative and so matter of fact. Keep ’em coming. Love you!

  5. What an outstanding conclusion sentence! I’m still laughing. Thank you for always being so wonderfully positive.

  6. You are truly a gifted writer who expresses your thoughts with honesty and a touch of humor, no matter how difficult some of the issues. I love reading your blogs and can’t wait for the next. I love you guys and can’t wait to see you in a few weeks. Love always, Denise

  7. Expressive? Sure. Perceptive? Not always. Having seen pics of you, he got that wrong.

    1/2 pound of meat? Well, some make burgers that large. Yeah, it’s too much, but for a growing kid, I bet it won’t be the last time. I can recall youthful excesses that a high-bur n metabolism shrugged off in a day.

    But I know the key to the post is the joy that comes from the times he speaks perfectly. And as one who had three non-autistic children, I can say we all cherish the moments our kids get it right. I remember telling myself at times that kids are amateurs, they trial-and-err their way to maturity and sound reason.

    Though I respect the added difficulties you face as a loving parent, from what I’ve read, there is much to be heartened by as your son finds his way. That he has parents who cherish the victories on his path is a great advantage that assures many more to come.

    • Thanks Kevin for such thoughtful comments. I always want people to know while this whole journey is a challenge, the kids, Earl and I also have a lot of fun together and really love our little nutty family.
      J

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